Twenty Days

I never dreamed we would make 20 days of school in a row.

But there is something else that is absolutely amazing. "Christian" has been struggling with his fear of needles for quite some time. It was to the point where my husband and I had to take him in to the HTC once a week to be accessed because he was fighting so violently. It was a physical and emotional nightmare for all of us. It is to the point where my son has been diagnosed with Post Traumatic Stress Disorder.

My sweet boy has been working with a play therapist and a physical therapist (swimming pool) and in order for him to get the full advantage of the pool he needs to be de-accessed and accessed more frequently during the week.

I think it has been the motivation he has needed to really start working through his fear. He absolutely loves being in the water. So far we have had three infusions where he has been still and not needed to be held down! Yes, another thing I didn't dream would ever happen.

Most people have a crisis for a short amount of time and things move on. When you are in the middle of a "season" of crisis living with a chronic condition it's hard to see the other side.

"Will it ever get better? Will we ever move forward?"

Yes, it will. It may not always be the outcome you want, but times will get better. Those times may only be moments, but you hold on to what you can.

You have to hold on to hope like your life depends on it.

Sometimes it's all you have.

 

Posted with Blogsy