Tuesday, September 25, 2012

In a matter of minutes....

This morning I went on the early school run and took "Lance" to school.  When I returned, my husband was sitting on the stairs, a pool of blood drops at his feet and Christian was in tears.  He tripped going up the stairs.  Yes, going up the stairs.

If the gash had been any larger, I think we would have been off to the hospital.

Things have been going so well for such a long time for my Christian and the minute I get complacent...something happens.

Just a little reminder that hemophilia is always with us...stumped toes and all.  It's amazing what can happen in just a few minutes.

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Sunday, September 16, 2012

Cellcept here we come!

post signature"Christian" is starting Cellcept tomorrow.  He was on it for a brief time with no problems, but the issue was that the doctor who started him on the treatment left the HTC and we never were able to see the result of a full run of the medication.

We are hoping that this helps his inhibitor come down.  It's currently at 28.  It sure would be nice to start Immune Tolerance

When I started to think about all that my Christian has gone through with his inhibitor, it's kind of overwhelming.  He was diagnosed at 11 months and he is now 6 1/2 years old.  The disheartening part is that I have heard of people living with an active inhibitor for years upon years.  You just never know how long it will take to tolerize (or even get to the point where you can try to tolerize).

I am just so grateful that things have been calm for these past couple of months.  It's been quite a respite for the entire family.

More about Cellcept to come.