Last week I received
an email from the physician who is "corralling" all of the doctors
involved in my "Christian's" care.
He wanted to know how my husband and I felt about discussing adjusting Christian's
treatment and lowering his frequency of
Xolair.
Yikes! No! We have been in such a great season with
hemophilia, even registering a zero
titer, that we do not want to change a
thing just yet.
When I reached out
to him and told him how we felt he completely understood. He just has the big picture in mind.
All I know is that
my son is walking. He's not using the
wheelchair, and I don't miss loading and unloading that chair every day. He even fractured his wrist right before
Christmas!
Now if you are
wondering why in the world I put an exclamation mark after the fact that he
broke his wrist, you have to understand that was that signified was that he was
out playing with his friends doing what other boys often do…they break things
:)
The beautiful part
was that he did not bleed.
I know it won't
always be this easy. But having "just" hemophilia is not too bad
these days.
I am grateful.
