Thursday, October 27, 2011

I'm Just Amazed

I have a Facebook account. I normally check in during the evenings, but sometimes I get messages during the day when someone posts to a couple of the groups I belong to. One of those groups is "Living With Hemophilia and Inhibitors." I was reading through a few posts the other day and was just blown away at how amazingly smart these caregivers are! When you look at the comments, often you would think that "these must be healthcare professionals."

No, most of us who parent children with a bleeding disorder are not clinicians, but we do know what is best for our children. Sometimes it's that good old "intuition" that kicks in and leads us to making the best decisions about the care of our children. I tend to believe that God has a big hand in the "intuition" department, but call it what you like, it's an important part of caring for our children.

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Friday, October 21, 2011

I know, I know....

I should never say this aloud or even write it, but hemophilia has really been behaving in our house lately.

"Lance" had a bleed around his knee (soft tissue) several weeks ago and it was a wake up call for him to get back to his regular infusing schedule without his Dad and I hounding him constantly. Sometimes that's what it takes.

"Christian" has the "normal" bruising, but all in all is fairly "clean", with the exception of the big bruise on his chin (who knows what he did to get that one:)

I even caught myself wondering when the last ankle bleed was for Christian. For some time it had been a weekly thing for him as he struggled with his target right ankle, but all is calm for now.

I am so grateful.

Grateful that we have plenty of factor.

Grateful that we have a fantastic homecare.

Grateful that Christian's port is "flushing beautifully."

Gratfeful that hemophilia is manageable unlike so many other disease states.

If this is what we have to deal with, so be it. I am just grateful beyond words that I have been blessed with two beautiful boys.

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