Sunday, February 18, 2018

With the Second Diagnosis Came Depression


Second in a series. 

I have been on medication for my clinical depression for over 25 years. There is no other option. Even throughout my second pregnancy, I took medication under my psychiatrist’s supervision. I’ve never been ashamed to admit my need for medication, but one thing that has still been difficult for me after 12 years is understanding the postpartum depression I experienced after the birth of my second child.

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Sunday, February 11, 2018

With the Second Diagnosis Came Depression

First in a two-part series.
I had never heard of hemophilia until the doctors came into my hospital room the day after my first son, Julian, was born. I soon learned that about two-thirds of those diagnosed with hemophilia are because of a spontaneous mutation. Simply put, a spontaneous mutation happens for no reason. It’s like being the winner of the lottery, except this diagnosis can hardly compare to winning large sums of money. I had no reason to think that Julian was anything other than a spontaneous mutation.  
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Tuesday, January 23, 2018

Tips for Managing Your Bleeding Disorder in the New Year


When you have a year that is best left in the past, ushering in the new year is a time of celebration. You start with a clean slate and an attitude of hopefulness for what is yet to come.
For many years I based the quality of a year on how many times hemophilia and an inhibitor disrupted our lives; how many hospitalizations, days missed from school, and events canceled were significant in the lives of my family. I even thought about how many times we were infusing and how many products we would need to control a bleed. 
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Saturday, December 16, 2017

7 Tips for Holiday Travel Success


When you have a bleeding disorder and you are traveling, there are many things to remember. Forgetting factor or Huber needles can leave you in a bind, because these are not items that are easily found at your local drugstore. Making a list and keeping it handy, regardless of how experienced you are with your bleeding disorder, is always a great tool.

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Sunday, December 10, 2017

Mama Bears and Warriors: Tears and Joy


Buckets. Buckets and buckets of tears. That’s the only way I can describe the tears I have shed over the years because of living with hemophilia in my home. Both of my sons have had their own struggles with hemophilia and inhibitors, and the tears I have shed have been a response to the various aspects of what hemophilia and an inhibitor can do to a person’s life. I would never wish an inhibitor diagnosis on my worst enemy.  To read the rest of this column, click here.

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