If you have experienced a joint bleed, read on....

I received this email and wanted to pass it along. If you have personally experienced a joint bleed, this group is looking for you.

It sounds like a worthwhile project.

EMAIL
Hi!
I am interested in understanding more about the experiences of hemophilia. My company is currently doing research on the sensations of joint bleeds and the experiences that patients go through. We are currently developing a simulator for one of the major pharmaceutical companies in the United States. We want to help doctors better understand what their patients experience, not just what they read in textbooks. I'd be interested to know more from the source. If you are interested or anyone you might know, please contact me via email abond@gwfassociates.com; we are located in NJ. Thanks for blogging as well, it brings the disease closer to home and helps people like myself who are not closely familiar have a better understanding.

Thanks,
Ann Marie

Best Regards,
Ann Marie Bond

GWF Associates, LLC
1 Sheila Drive
Tinton Falls, NJ 07724
732.933-8780 (t)
732.933.8783 (f)
abond@gwfassociates.com

ATTACHED LETTER

July 5, 2011

Dear Patient,

Permit me to introduce you to GWF Associates LLC, a multimedia education company that has been in engaged in teaching physicians and other healthcare providers since 1974. We have developed programs for diverse Medical Society Congresses that have been shown in 23 countries and translated into 13 languages.

Our current project is to help physicians better understand the challenges to their patients with Hemophilia and we are developing a “virtual experience” in which physicians briefly “become” a patient with Hemophilia. This educational experience includes simulation of the sensation experienced during a joint bleed. We are inviting you to participate in a brief discussion about challenges faced by hemophilia patients, with emphasis on the sensations that occur during a joint bleed. It will take less than an hour and you will receive a stipend of $150.00 plus any travel expenses to our Tinton Falls office.

Importantly, you will be helping doctors to better understand the challenges to daily life that individuals with hemophilia encounter. Experiential learning takes physicians beyond what they read in a text book to actually “feel” the restriction imposed by their condition.

The following is our address and contact information:
GWF Associates LLC
1 Sheila Drive
Tinton Falls, NJ 07724
732-933-8780
morsetti@gwfassociates.com

We look forward to hearing from you.

Best regards,


Marian Orsetti

Senior Medical Writer