Happy 4th! ? !

The last two "July 4th's", my "Christian has been in the hospital getting a new port. He is on his third, so far so good. While there on the 4th, we have watched the fireworks from his hospital window...a fantastic show in Albuquerque.

We were so glad that this year we would actually be home to watch fireworks!

Saturday morning my husband, out loud, made the comment about not being in the hospital on the 4th. Less than an hour later, our hematologist called and said that Christian's port culture from Monday (he went in for an MRI) grew positive!

Thankfully we did not have to go in, because he is not showing symptoms of fever or any kind of side effects from an infection. She thinks it may just be a topical contaminant kind of thing. We went on Saturday to the local hospital to do another culture, so we wait.

You just never know when something is going to come up. You have to be prepared for anything when you have a child with a bleeding disorder. Automatically the plans you had start to change and your mind begins to race. Sometimes, you have to change and go along with what needs to be done. Other times you may luck out and not have to race to the hospital or clinic.

You have to have a little humor throughout this process. Not that a bleeding disorder is something to joke about, but as a parent we have to learn to handle situations with grace, calmness, a positive attitude, and know that our children are always watching how we react.