I should never say this aloud or even write it, but hemophilia has really been behaving in our house lately.
"Lance" had a bleed around his knee (soft tissue) several weeks ago and it was a wake up call for him to get back to his regular infusing schedule without his Dad and I hounding him constantly. Sometimes that's what it takes.
"Christian" has the "normal" bruising, but all in all is fairly "clean", with the exception of the big bruise on his chin (who knows what he did to get that one:)
I even caught myself wondering when the last ankle bleed was for Christian. For some time it had been a weekly thing for him as he struggled with his target right ankle, but all is calm for now.
I am so grateful.
Grateful that we have plenty of factor.I
Grateful that we have a fantastic homecare.
Grateful that Christian's port is "flushing beautifully."
Gratfeful that hemophilia is manageable unlike so many other disease states.
If this is what we have to deal with, so be it. I am just grateful beyond words that I have been blessed with two beautiful boys.
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