January 2014
Dad and “Christian” go to the local Monster Truck
Rally. Do you notice his knee is
bent? That was looking good for that
day. He was not able to get anywhere without
the wheelchair.
February 2015
I am walking with both of my boys through the streets of New
York. Maybe slower than most, but no
wheelchair needed.
August 2015
At the NHF Annual Meeting, we had the opportunity to take in
a Rangers game. Christian had never been
to a major league game, so we went. Of
course I did not read the email with the instructions on which side of the
stadium to park so we ended up on the opposite side. Then we climbed every, single stair to the
top suites. My Christian did not miss a
step (or complain). We grabbed our food,
sat down and the first Ranger we saw come up to bat in the 3rd
inning hit a home run! It was
poetic. My son has been through hell and
back with his inhibitor and at that moment I sat and gave thanks to God in a
way I don’t think that I ever have. “Thanks,
God…Wow.”
A homerun may not be exciting for some, but even for this
mama (who doesn’t “follow the volleyball”) I was completely blown away! When I heard the crack of the bat and watched
the ball go out of the park, the fireworks went off, the girls carrying the
flags went from one side of the outfield to the other…..it was as if that
moment was made for my son.
Our family has traveled this crazy journey of living with an
inhibitor and it has taken us to dark, horrible places. The journey is not over, but we have seen the
other side filled with light and hope.
Today Christian started 4th grade.
God is good.
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