Thursday, April 17,
2014 is the day our family has been waiting for and working towards for
months. It is the day that our mighty
warrior "Christian" receives his first dose of Xolair, a relatively
new injectable drug that is used to treat moderate to severe asthma. My son does not have asthma, but has
developed an allergy to Factor VIII, the clotting factor his body does not
produce. Allergies to Factor VIII are
not as common as allergies to Factor IX and this has been the problem. There are not many cases that have been
studied and successfully treated.
Our hematologists
and allergist in New Mexico and Colorado have been working tirelessly to get
the drug approved through our insurance and it finally happened.
What if he has an
allergic reaction to the Xolair?
What if after his
second dose in May he is still not able to tolerate Factor VII?
What if we never try
the Xolair and it actually works?
I have no idea what
is going to happen and I am not going to expect the worse...only the best.
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