Wednesday, April 16, 2014

The Day Has Arrived

Thursday, April 17, 2014 is the day our family has been waiting for and working towards for months.  It is the day that our mighty warrior "Christian" receives his first dose of Xolair, a relatively new injectable drug that is used to treat moderate to severe asthma.  My son does not have asthma, but has developed an allergy to Factor VIII, the clotting factor his body does not produce.  Allergies to Factor VIII are not as common as allergies to Factor IX and this has been the problem.  There are not many cases that have been studied and successfully treated.

Our hematologists and allergist in New Mexico and Colorado have been working tirelessly to get the drug approved through our insurance and it finally happened. 

What if he has an allergic reaction to the Xolair?

What if after his second dose in May he is still not able to tolerate Factor VII?

What if we never try the Xolair and it actually works?

I have no idea what is going to happen and I am not going to expect the worse...only the best.

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