Sunday, December 2, 2012

Catching Our Breath

On the Sunday after Thanksgiving "Christian" developed a nasty knee bleed....so much for making it through the holiday without incident :)

The knee was not looking any better after a day and night of Q3 so we took him in to the HTC for a quick check and were admitted to the hospital.  With Christian's inhibitor, we often have to go into the hospital to get the bleed under control.  Thankfully his pain was not out of control like his last ankle bleed/hospitalization.

His weekly port access is still very difficult.  The HTC nurse thinks that he is exhibiting signs of post traumatic stress.  It makes sense.  Tomorrow we go for our first appointment with the play therapist. 

I sure hope this is a road that will give Christian some understanding into his fears.
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