Wednesday, January 30, 2013
Ugh!
Posted by Cazandra Campos-MacDonald at 2:16 PM 1 comments
Labels: hospitals, inhibitors, living life
Sunday, January 13, 2013
It Never Ends...
We are finally back to dosing "Christian" once a day.
Monday is coming and he will be back at school (with a wheelchair for a few days)!
He wakes up this morning with a lump over his eye...he fell out of bed and hit the nightstand...
It just doesn't end...you just have to laugh sometimes and count your blessings :)
Posted by Cazandra Campos-MacDonald at 6:48 PM 0 comments
Labels: living life
Tuesday, January 8, 2013
A New Target Joint
So much for "Christian" getting back to school after Christmas vacation...
He is having a pretty significant knee bleed. Just when we thought things were going well and we were looking forward to "schedule". And it looks like it is unofficially a new target joint...Right knee and right ankle.
What's hard to believe is that he is not in extreme pain. His knee is 2.5 centimeters larger than the unaffected knee. When his ankle bleeds his pain is uncontrollable.
I guess every joint is different in how pain manifests.
Q3 continues.....
Posted by Cazandra Campos-MacDonald at 8:41 PM 0 comments
Labels: inhibitors, living life, target joints