When I read stories about people living with chronic illness I am absolutely fascinated. It’s not that the details of their illness particularly fascinate me, but it’s what I have in common with them that deeply resonates in my heart. I am the mother of two sons with severe Hemophilia A and life with a bleeding disorder can be very difficult. My oldest son, Julian who is 19, has not had many complications throughout his life. He infuses himself regularly, and a young man self-infusing is not “normal” for most, but for him it’s just part of his world. My youngest son, Caeleb who is 10, is my mighty warrior. This precious boy has endured six ports, thousands of infusions and more hospital stays than I can count. He lived through some of the most excruciating pain I have ever witnessed, lost mobility for over a year and has severe joint damage. Despite all of that, he is a happy, well-adjusted boy who enjoys school and recess and has a compassionate heart. It’s been a rough journey.
To read the rest of the post visit www.beingfibromom.com/a-prisoner-of-hope.
Thank you, Brandi!
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