My
"Christian" has been in the hospital for 17 days as of today. It's been a long, extremely difficult haul
this time. Family and friends are
constantly calling, texting, and "Facebooking" to check on him. But today someone actually asked, "How
is 'Lance' doing?" My 17 year old
Lance also has Severe Hemophilia and has been extremely blessed to not have
complications. But he struggles with the
family through Christian's bleeds and hospitalizations.
My husband and I try
to keep life as normal as possible for Lance by keeping his school and
rehearsal schedule as unaffected as possible.
And for the most part it is uninterrupted.
But what most 17
year old young men do not have to do is help hold their little brother down as
his port is being accessed.
Most 17 year old
young men are not carrying their brother up and down the stairs because his
little brother can't walk because of a bleed.
And most 17 year
olds are not nearly as compassionate as my Lance because when his little
brother hurts, he hurts too.
Our children with
chronic illnesses grow up at a different rate than most. Maybe it's not obvious because they truly are
goofy kids, but when it comes down to what matters most, they are heads and
shoulders above most.
Thank you, for
asking about my Lance. He matters
too. Don't leave out the brothers and
sisters, they are also on the journey.
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