We had such a nice
breather...about 3 weeks without any bleeds.
It was great, while it lasted.
The thought actually went through my mind, "The first week of
school is going to be great!"
School starts today and "Christian" is in the hospital :(
This past Thursday
evening Christian's knee started to bleed.
We treated aggressively and things were looking up until Saturday
evening and his knee blew up. Ugh. The dosing of morphine I was able to give him
was finally at the point of not working so off to the hospital we went.
He is doing much
better and he may get to go home in a day or so, but I am not sure if he will
make it to school this week. And to top
it off, Christian will miss all of the second week of school because he will be
in appointments at National Jewish in Denver as they try to investigate the
reason behind his allergy to Factor VIII.
I have worked on getting the appointments at National Jewish since May...we can't miss this opportunity. If they can find out what the problem is, then it will be time well spent. I just want my son to be able to take Factor VIII.
I absolutely hate
seeing him in pain. Seven year old boys
should be running and playing and it breaks my heart that he can't. And when he is
well enough to run and play, it seems to not last very long until the next
bleed comes.
We have to keep hope
alive and continue to pray that answers are found.
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