It Just Blew Up

"Christian" had been complaining of pain in his knee for severral days.  Last Friday we infused per our bleed protocol and over the weekend, all seemed well...until Monday.  We infused per a bleed again, I went to the school to give a second dose and ended up bringing him home.  His knee was swelling and he was limping.

After an afternoon on the sofa the knee was looking better, until around 6 pm when it just seemed to "blow up".  He has never had a knee bleed before and it looks awful.  Just like the photos you see from Laurie Kelley or the NHF.

We came into the hospital last night and he has rested comfortably since around 2 am (with the help of morphine for the pain).

I've no idea what the day is going to bring, but I am grateful to be at the hospital this morning.

Familiarity

My "Christian" and I are in the infusion suite gettin an infusion of IVIG.  Hie immune system needed a little boost, so we will be out in a few hours.  As Christan says, "easy peasy lemon squeezie".

I really feel like the brace we had made in Denver has made a huge difference for Christian.  So far, no ankle bleeds.  I really think it's giving him the support he needs to keep everything in the right place.

Daily infusions are going well, but he is a bit bruised up right now. 

Things are going well.

All You Need

My "Christian" is starting to realize he is different.  Something happened at school this week that made him see that he can't run as fast and far as the other kids.  When he came home from Denver with his new brace his entire class was fascinated and excited for him.  I mean, Mater and Lightning McQueen are on his brace....it is way cool :)

His teacher called me, told me he wasn't himself and she was a little worried.  See, my Christian is a "social butterfly" so for him to be withdrawn is a pretty big thing.  By the time my husband and I got to the school, things were a little better.  It did my heart good to see him break into a great big smile when we walked in the door.

Sometimes that's all you need. 

To know you are not alone.

Catching it Early

When I got the call from school that "Christian's" ankle was bothering him after recess, I immediately went and infused him.  It was the end of the day, so I brought him home early.  The HTC recommended dosing with Novo every 2 hours.  Normally, between me and the hubs, this would work, but hubby has been extremely sick.

Dosing every 2 hours alone makes for a very tired Mommy.

The next morning, I called the HTC and told them I would like for someone to take a looksie because I really did not want a repeat of the most awful bleed of all time from this past November.

We have been admitted, lots of NovoSeven and Christian is doing great!  We seemed to get ahead of this bleed and nipped it in the bud early.

We should be heading home in the morning :)

So far, so good

The New Year has started rather quietly where hemophilia is concerned. So far, so good. We are trying to get to Denver to pick up "Christian's" brace. I hope within the next two weeks we can get there.